Kindergarten and Glycogen Storage Disease

Tomorrow, my oldest son heads off to his first day at kindergarten. It’s a new school for us. Which means trusting a network of total strangers with the management of his metabolic disorder. His life will be in their hands.

I can’t describe the terror that I feel right now.

But this is necessary. Living a normal life means not keeping him cooped up. He can’t grow up letting this thing define him.

So we have to do this. We have to place his care in the hands of others and spend the day staring anxiously at our phones while waiting for updates.

Then we’ll do it again tomorrow.

The fear will subside as the days go by.

We’ll get him there.